Living with a vesicovaginal fistula (VVF) is not only a physical challenge — it can also affect your hormones, emotions, and overall wellbeing. Many women describe feelings of exhaustion, anxiety, and loss of confidence. These changes are common, understandable, and nothing to be ashamed of.
How VVF Affects Emotions
- Stress & anxiety – Constant leakage, odour, or fear of accidents can lead to ongoing worry.
- Low mood or depression – Social isolation and loss of confidence may cause sadness and hopelessness.
- Impact on relationships – Intimacy can feel difficult, which may create strain with partners.
- Trauma responses – For women whose VVF followed surgery or childbirth, the experience can feel like a trauma.
Hormonal Factors
- Stress hormones (cortisol) – Living with constant distress raises cortisol levels, which can affect sleep, energy, and even weight.
- Sex hormones (oestrogen, progesterone, testosterone) –
- Vaginal tissues are sensitive to hormone levels. Low oestrogen, especially after menopause or hysterectomy, may worsen dryness or healing problems.
- Hormonal changes can also affect libido, mood, and intimacy.
- Menopause – Women who develop VVF after pelvic surgery or radiotherapy may experience early menopause, with added hormonal symptoms (hot flushes, mood swings, night sweats).
Treatment & Support Options
1. Medical Care
- Surgical repair – the main treatment to close the fistula and stop leakage.
- Topical oestrogen creams/pessaries – may help strengthen vaginal tissues before or after surgery.
- Hormone replacement therapy (HRT) – can support women with early or surgical menopause (to be discussed with a specialist).
2. Emotional Support
- Counselling or therapy – talking to a professional can help process trauma and rebuild self-esteem.
- Peer support – connecting with others who understand can reduce isolation and stigma.
- Support groups – charities like VVF Support UK provide safe spaces for sharing experiences.
3. Lifestyle & Self-Care
- Relaxation techniques – breathing, yoga, or meditation to reduce stress hormones.
- Gentle exercise – walking or stretching can improve mood and circulation.
- Nutrition – balanced diet supports hormone balance and recovery.
- Sleep – prioritising rest helps regulate stress and repair tissues.
Key Takeaway
VVF doesn’t just affect the body — it can have deep hormonal and emotional effects too. With the right mix of medical treatment, emotional support, and self-care, women can heal not only physically, but also regain confidence, balance, and joy.
🌸 At VVF Support UK, we understand the hidden impact of VVF and are here to walk beside you on your journey to recovery.
